CFCCC
ABOUT CFCCC

* Who We Are

* Join Us!

TOPICS

* Chronic Fatigue Syndrome,
Fibromyalgia, and
Chemical Sensitivity

RESOURCES

* Resource Guide

* Advocacy
* Children and Youth
* Crisis Lines
* Dental Care
* Doctors Etc.
* Education
* Employment
* Environment
* Financial Services
* Food and Related
* Frugal Living
* General Services
* Health Care Services
* Home Delivered Anything
* Housing
* Improving the Quality of Life
* Legal Services
* MCS
* Medical Supplies
* Medicare/Social Security
* Mind/Body Work
* Pets
* Pharmacies / Medical Supplies
* Phone Numbers to Know
* Seniors
* Social Life
* Social Services
* Support Groups
* Transportation
* Troubleshooting
* Veterans Services
* Vision Impaired Services
* Voting Information
* Websites

* Canary Times

 

* Contact Us

 

 

CFCCC Resource Guide

Advocacy

 

American Fibromyalgia Syndrome Association, Inc.

 

A nonprofit organization which raises funds for research into Fibromyalgia Syndrome (FMS), Chronic Fatigue Syndrome (CFS), and related conditions.

 

6380 E. Tanque Verde Rd., Suite D

Tucson, AZ 85715

Ph: 520-733-1570

Website: http://www.afsafund.org

 

Chronic Fatigue Syndrome, Fibromyalgia & Multiple Chemical Sensitivity Coalition of Chicago

 

Serves persons with Chronic Fatigue Syndrome, Fibromyalgia, and other related disorders in the greater Chicago metropolitan area as well as surrounding states.  Offers referrals, phone friends, lending library, support groups, newsletter, and resource directory.

 

President:  Barbara Morrison

PO Box 277

Wilmette, IL 60091

Ph: 312-409-5363

Fax: 847-920-9166

Email: EditorCCFSA < at > aol.com or editorcfccc < at > aol.com

Website: www.CFCCC.net

Newsletter:  Canary Times

 

The Chronic Fatigue and Immune Dysfunction Syndrome Association of America (CFIDS Association of America)

 

PO Box 220398

Charlotte, NC 28222-0398

Ph: 800-442-3437 (voice mail), 704-365-2343 (resource line)

Fax: 704-365-9755

Email: cfids < at > cfids.org

Website: www.cfids.org

CFIDS in Youth website:  http://www.cfids.org/youth.asp

 

See also the CFIDS Provider Education Project (supported by the CDC) for fact sheets, disability and assessment tools, resources and much more at:

http://www.cfids.org/treatcfs/

 

Coalition of Citizens with Disabilities in Illinois (CCDI)

 

A statewide non-profit advocacy organization.  Dedicated to “providing a united voice for the rights and equality of individuals with disabilities in Illinois.”

 

Springfield Office
300 East Monroe, Suite 100
Springfield, IL 62701
E-mail:
ccdi < at > ccdionline.org

(Voice/TTY): 800-433-8848

(Voice/TTY) 217-522-7016

Fax: 217-522-7024

Website: www.ccdionline.org

 

Council for Disability Rights

 

Provides public education, information, referrals, counseling, job training, and many other services to the disabled community.

Monthly publish CDR Reports.

 

30 East Adams, Suite 1130

Chicago, IL 60603

Ph: 312 444-9484 (Voice), 312 444-1967 (TTY)

Fax: 312 444-1977

Email: cdrights < at > interaccess.com

Email: contactus < at > equipforequality.org

 

Website: http://www.disabilityrights.org

 

Equip for Equality

 

Advancing the human and civil rights of people with physical and mental disabilities in Illinois.  A comprehensive statewide advocacy organization providing self-advocacy assistance, legal services, education, public policy advocacy and systems monitoring.

 

Chicago:

20 North Michigan Avenue, Suite 300
Chicago, IL 60602
(312) 341-0022
(800) 537-2632 (Voice)
(800) 610-2779 (TTY)
(312) 341-0295 (Fax)
Se Habla Español and other languages
American Sign Language (ASL)
contactus < at > equipforequality.org

 

Northwestern Illinois

1617 Second Avenue
Rock Island, IL 61201
(309) 786-6868 (Voice)
(800) 758-6869 (Voice)
(800) 610-2779 (TTY)
(309) 786-2393 (Fax)

 

Central Illinois

235 South Fifth Street
P.O. Box 276
Springfield, IL 62705
(217) 544-0464 (Voice)
(800) 758-0464 (Voice)
(800) 610-2779 (TTY)
(217) 523-0720 (Fax)

 

Fibromyalgia Network

 

PO Box 31750

Tucson, AZ 85751-1750

Ph: 800-853-2929

Website: http://www.fmnetnews.com/

 

I Remember Me, a film written, directed, produced and acted by Kim Synder.  A dramatic telling of a person living with CFS. 

Given *** by Roger Ebert.

 

Available at Zeitgeist Films

212-274-1989

www.zeitgeistfilms.com

or

Amazon.com   

 

The International Association for CFS/ME

27 N. Wacker Drive Suite 416

Chicago, IL 60606

Voice Mail: 847-258-7248

Fax: 847-579-0975

www.aacfs.org/

Admin < at > iacfs.net

 

The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment.

 

National CFIDS Foundation

103 Althea Road

Needham, MA 02492

Ph: 781-449-3535

Fax: 781-449-8606

Email: info < at > ncf-net.org

Website: http://www.ncf-net.org/

 

National Organization for Rare Disorders, Inc.

 

Working toward the prevention, treatment, and cure of rare "orphan" diseases.


55 Kenosia Avenue
PO Box 1968

Danbury, CT 06813-1968

Ph: 203-744-0100, 800-999-6673 (voicemail only)

Fax: 203-798-2291

Email: orphan < at > rarediseases.org

Website: http://www.rarediseases.org/

 

OWL Illinois

 

The Older Women's League (OWL) is open to anyone of any age. It presents programs on issues of interest to midlife and older women, and advocates for policy changes on the state and national level.  A good resource for Medicare recipients of any age.  Call the office for local chapters.

 

OWL (Illinois)
28 E. Jackson St.
#1900

Chicago, IL 60604
(312) 347-0011

 

OWL (National)
3300 N. Fairfax Dr., Suite 218
Arlington, VA 22201
1-(800) TAKE OWL
(702) 812-7990, Ext. 21
FAX: (703) 812-0687

 

Website: http://owlill.wnkcommunity.com/index.html

 

Patient Advocate Foundation

 

Serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis of chronic, debilitating or life-threatening diseases.

 

Inquiries at their 800 number are handled by a case manager, who will ask for name, number, and info and calls back within 24-48 hours.

 

700 Thimble Shoals Blvd, Suite 200,

Newport News, VA  23606

Ph: 800-532-5274

Fax: 757-873-8999

Email: help < at > patientadvocate.org

Website: http://www.patientadvocate.org/

 

People’s Medical Society

 

The largest medical consumer advocacy organization in the United States, educating patients about health care and medical rights.

 

P.O. Box 868
Allentown, PA 18105-0868
Phone: 610-770-1670

e-mail:  cbi < at > peoplesmed.org

Website: http://www.peoplesmed.org

 

ProHealth's ImmuneSupport.com

Fibromyalgia & Chronic Fatigue Syndrome Website

Email US or Call US at 1-800-366-6056

Monday-Friday, 7 a.m.-5 p.m. PST

International Callers can reach us at 001.805.564.3064

www.immunesupport.com/library/showarticle.cfm/ID/4890

 

Public Citizen

Public Citizen is a national, nonprofit consumer advocacy organization founded in 1971 to represent consumer interests in Congress, the executive branch and the courts.

1600 20th Street, NW
Washington, DC 20009
202-588-1000

www.citizen.org

 

Rainbow House/Arco Iris

 

Non-profit organization working to end domestic violence.  Its mission is to provide outreach and violence prevention services to individuals, families and communities and to be effective public policy advocates for systemic change that reduces the prevalence and impact of domestic violence.

 

Little Village Outreach
4149 W. 26th Street
Chicago, IL 60623

Ph: 773-521-1815, 312-461-0462 (TTY)

Website: http://www.rainbow-house.org

 

Sjogren’s Syndrome Foundation

 

Members receive ‘The Moisture Seekers’ newsletter; discounts on educational materials and Foundation-sponsored seminars and conferences; a network of volunteer contact people, groups and chapters that provide support.

Sjögren's Syndrome Foundation
6707 Democracy Boulevard
Suite 325

Bethesda, MD 20817

Toll Free: (800) 475-6473
Local call: (301) 530-4420
Fax: (301) 530-4415

Email: tms < at > sjogrens.org

Website: www.sjogrens.org

 

Women’s Advocacy:  Northwestern University

The Women's Center serves as a gathering place for women students, staff, and faculty across lines of race, class, and sexual orientation. It is a safe haven where NU women connect, as well as an environment suited to enrich personal, professional and academic lives. The Center conducts outreach, educational programming, coalition building, advocacy, counseling and resource referral, with the goal of gender equity always imperative.

 

2000 Sheridan Rd.

Evanston, IL  60208

847-491-7360503-1400
E-mail: womenscenter < at > northwestern.edu